Ta spletna stran uporablja piškotke, tako da vam lahko zagotovimo najboljšo uporabniško izkušnjo. Podatki o piškotkih so shranjeni v vašem brskalniku in opravljajo funkcije, kot so prepoznavanje, ko se vrnete na našo spletno stran in pomagate naši skupini, da razumejo, kateri deli spletnega mesta najdete najbolj zanimive in uporabne.
Viri za zdravstvene delavce
This page includes resources for healthcare professionals treating and managing EB patient care. Please visit our EB podpora in viri for content relevant to non-medical professionals.
Publikacije
In addition to DEBRA International’s Smernice za klinične prakse, so strokovnjakom, ki upravljajo oskrbo bolnikov z EB, na voljo številni dodatni viri.
- Kirurški postopki
- Priporočila in vaje za opornico rok za otroke z bulozno epidermolizo
- © Birmingham Children’s Hospital NHS Trust, available here by kind permission of the Birmingham Children’s Hospital Occupational Therapy team
- Birmingham Women’s & Children’s NHS Foundation Trust has also produced a variety of zloženke in izobraževalni videi za profesionalce.
Kako se napotiti na skupino za podporo skupnosti
naše skupina za podporo skupnosti works closely with medical and health professionals. To learn more about this referral process, please read the referrals policy.
Preverite naše politike za najnovejše informacije.
EB-CLINET
EB-CLINET is an initiative to improve medical care for people with EB by encouraging collaboration between health care professionals working with EB.
Duševno zdravje in redke bolezni
Zdravniki 4 redke bolezni have launched a new online course, ‘Mental Health and Rare Disease’, consisting of 8 interactive lessons.
DISCLAIMER: DEBRA cannot be held responsible for the content of external sites.