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Viri za zdravstvene delavce

This page includes resources for healthcare professionals treating and managing EB patient care. Please visit our EB podpora in viri for content relevant to non-medical professionals.

Publikacije

In addition to DEBRA International’s Smernice za klinične prakse, so strokovnjakom, ki upravljajo oskrbo bolnikov z EB, na voljo številni dodatni viri.

Kako se napotiti na skupino za podporo skupnosti

naše skupina za podporo skupnosti works closely with medical and health professionals. To learn more about this referral process, please read the referrals policy.

Preverite naše politike za najnovejše informacije.

EB-CLINET

EB-CLINET is an initiative to improve medical care for people with EB by encouraging collaboration between health care professionals working with EB.

Duševno zdravje in redke bolezni

Zdravniki 4 redke bolezni have launched a new online course, ‘Mental Health and Rare Disease’, consisting of 8 interactive lessons.

Izvedite več


 

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